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And another one gone, 

and another one gone
Another one bites the dust
Hey, I’m gonna get you too
Another one bites the dust

 

Katie’s last and final helmet appointment today. She graduated from having to have a helmet. So Thank you to Nicole from Wrights & Filippis you were amazing even though I am not the easiest mom to handle because I really really like seeing her head. It’s a pretty cranium with lots of hair.

This month has been great so far when it comes to Katie’s medical stuff. Off the Sildenafil aka baby viagra for her heart. Fourth clean scan for pulmonary hypertension yay! and no sign of a heart murmur which is just fantastic. Today she finally got to not need a helmet anymore. Now I’m just waiting for Wednesday, her U of M pulmonologist to see what they are going to do next. I’m really hoping they lower her PEEP from 7 to 5 or switch her to CPAP setting or maybe even a trial period off the ventilator. We will see. And I will update.

She’s such an awesome little person I can’t wait until she can walk, run, crawl, break stuff. I just can’t wait. (Excuse me while I bolt down everything in my house)

I’m going to break all your stuff!

 

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